Saturday, July 11, 2015

Yesterday...

Yesterday was Friday, the end of yet ANOTHER rough week. I don't why I suffer the most at dialysis. No one else is crying or moaning... And I'm the youngest there:(


Yesterday, I was hoping they'd use my fistula but the top poke was very hard to find because it's deep so by the time they got it in BOTH lines clotted. It was too much to watch!! As the tech disconnected the lines, the blood just dangled in mid-air like jello-ish. YIKES!!! They ended up having to use the port/catheter in my chest again which beeped every 10 minutes. #irritating

I'm beginning to notice a stench about myself and I can't stand it even more when I have to go potty. The tech said dialysis patients suffer from UREMIA and that I should Google it when I can. I just remembered...

Uremia (uremic syndrome) is a serious complication of chronic kidney disease and acute kidney injury (also known as acute renal failure). It occurs when urea and other waste products build up in the body because the kidneys are unable to eliminate them. These substances can become poisonous (toxic) to the body if they reach high levels. Link

Found this too:

"Uraemia is usually a very gentle way to die...increasing drowsiness,
weakness, a little confusion, coma and drift away. Cancer ,too, can be that way too..."

I smell like everyone else there at dialysis ⏩ like DEATH!  Okay, maybe that was a little DRAMA QUEEN of me

Here's hoping for a great weekend filled with LOVE & laughter, good times. Gonna make dinner for our childhood friends moving back up here to Utah.

Signing Off,
❤Faga


Saturday, June 20, 2015

A Different Kind of Sadness

Why am I so depressed?! Why do I get so depressed? I'm surrounded by a loving & supportive family and the best friends. Could it be hormonal? What triggers it? I can get pretty down... Our house can be filled with people laughing and having a good time, and I still feel lonely. Idk what's wrong with me. I am thankful for all I have and have been blessed with... #GodIsGood, I just don't know what's wrong with ME:'(


Friday, June 19, 2015

6.19.2015

Welp, today they tried to use my fistula & it was a NO-GO:( Better luck on Monday [pleeease]!!!!



Today is alright but I'd rather be at home with the babies❤


Saturday, June 13, 2015

5 Hour Days

Dialysis takes 5 hours every MWF , and for a "chronic" couponer such as myself, that really bites!! I'm there on days the sales start and end, store delivery trucks bring in the goods, etc. It's all good tho cause I get mines.




Today, I made sure I took a painkiller, a couple of benadryl and a pill for nausea. I was feeling really really good...IRIE

Today went by kinda slow and I still have pain in my back where I had a kidney biopsy.  I'm glad its the weekend though so I can get some family time in. Just gotta be careful not to drink too much or else.


Sunday, June 7, 2015

my name is jasmyn lefagaoali'i nuga and i have chronic kidney disease

in december of 2014, before christmas, i fell. EVERYTHING went downhill after that -- but the worst thing that happened last year... i lost the love of my life, my hero, MY DADDY a few months before.



now i don't know if my condition worsened because i was in a slum mentally, emotionally and physically, but i've been a diabetic for almost 20 years, perhaps even as a child.

i was rushed to the er because i couldn't breathe. a week or so after my fall, my mom noticed i hadn't been getting up and when i finally did, my belly was 5X its normal size.  she was so scared, HELL, i was scared because the unthinkable was finally coming to pass -- i was gonna need dialysis and fast!  sure enough, as my brothers waited for the er doc to come in to see me, the nephrologist (my Dad's nephrologist) came in first to tell me my kidneys were failing.

it took them an entire hospital stay to realize i needed to be dialyzed.  my next visit, they finally dialyzed me every day for a whole two weeks.  it was the hardest thing i had to deal with in life, and believe me, i've been through a lot since 1998 when i was diagnosed with a brain tumor.

my name is jasmyn lefagaoali'i and this is my story of chronic kidney disease, my journey through it all and hopefully, the happy ending.

love,
faga